Cornelia De Lange Syndrome Awareness Day – May 10, 2025
Every year on May 10, communities around the world come together to observe Cornelia De Lange Syndrome Awareness Day. This day is dedicated to raising awareness about Cornelia De Lange Syndrome (CdLS), a rare genetic disorder that affects various aspects of growth and development.
History and Significance
Cornelia De Lange Syndrome was first described in 1933 by Dutch pediatrician Cornelia de Lange. Since then, awareness and understanding of the condition have evolved significantly. The first awareness day was established to provide families and individuals affected by CdLS a platform to share their stories, advocate for support, and promote research.
On this day, we aim to shed light on the challenges faced by those living with CdLS and celebrate their strengths and achievements. By increasing awareness, we hope to foster a more inclusive society that understands and accommodates the unique needs of individuals with this syndrome.
How It’s Observed
Observing Cornelia De Lange Syndrome Awareness Day can take many forms. Families and support organizations host events, social media campaigns, and fundraising activities to promote awareness. Here are some ways you can participate:
- Wear Purple: Purple is the official color of CdLS awareness. Wear purple clothing or accessories to show your support.
- Share on Social Media: Use hashtags like #CdLSAwarenessDay to share information, stories, and resources. Spreading the word helps reach a broader audience.
- Participate in Local Events: Check for local events or webinars focusing on CdLS. This is a great way to connect with others and learn more.
- Fundraising: Consider organizing or participating in fundraising events to support research and resources for those affected by CdLS.
Fun Facts About CdLS
- Cornelia De Lange Syndrome occurs in approximately 1 in 10,000 births.
- The syndrome is caused by mutations in genes that play a crucial role in development, particularly in the early stages of life.
- Individuals with CdLS often display unique physical features, including distinctive facial characteristics and limb malformations.
Call to Action
This May 10, take a moment to learn about Cornelia De Lange Syndrome and its impact on the lives of those affected. Whether you choose to wear purple, share information online, or participate in local events, your involvement can help raise awareness and foster understanding. Together, we can make a difference!
For more information about Cornelia De Lange Syndrome, visit the CdLS Foundation website and discover how you can support this important cause.
